Long Covid Podcast

I talk with Marisa Renee Lee about Long Covid, identity, and what it takes to endure a season where answers are slow and uncertainty is constant. We explore grey grief, reality based hope, and the practical choices that help us keep moving towards healing even on the hardest days. • Getting ill after being highly capable and reliable • Rewriting a book when life flips the premise • Authenticity when capacity shrinks and priorities shift • Defining identity through val...

I sit down with Dr Mel Houser to rethink neurodiversity as a normal fact of human life and to name how shame, masking, and burnout can build when the world expects one way of being. We connect those realities to Long Covid and ME/CFS, showing how access needs, cognitive pacing, and community support can change what recovery and participation look like. • Neurodiversity as the full range of human brains, not a rare exception • Why “one size fits all” environments create struggle a...

I'm joined by Fatigue Coach Pamela Rose as we dig into why pacing feels so hard and why “energy management” is a better, more practical way to think about it. We share how to find a steadier baseline, account for cognitive and emotional load, and start increasing activity without tipping into PEM. • Defining pacing as shaping the day around available energy • Prioritising needs and wants over ‘shoulds’ • Using consistency to create capacity for healing • Learning the nuance behind physical, ...

Chris Sykes-Popham shares how he goes from an adventurous Royal Marines career into a brutal ME/CFS crash, then back to full recovery and a life rebuilt around balance and self-trust. We explore perfectionism, invisible illness, and why nervous system regulation can feel like the least popular answer yet still be the most practical path forward. • Early warning signs like post-exertional payback and brain fog • Losing a former identity and rebuilding meaning after recovery ...

I talk with Heather Wilde, a doctor of physical therapy, about why Long Covid and ME/CFS symptoms can be downstream of blocked drainage and disrupted nervous system signalling rather than a single “broken” part. We follow her plumber and electrician framework from real client stories into craniosacral therapy, inflammation, and why hope often returns when someone finally finds the true restriction. • Heather’s hands-on manual therapy approach and why she keeps expanding her toolkit&nbs...

Dan Neuffer and I explore authentic living as a practical way to honour our needs without abandoning responsibility, and why that balance matters even more when we are unwell. We look at how fear, perfectionism, and people-pleasing create inner conflict, drain our energy, and can keep our nervous system stuck in threat. • Defining authentic living as self-honouring with balance • Why constant selflessness can become self-neglect • How childhood patterns and social approval ...

I explore breath as a practical healing tool, especially when breathlessness, air hunger, or panic keeps the body stuck in survival mode. I share why “appropriate breathwork” is gentle, flexible, and powerful enough to support both recovery and everyday health. • Why breathing patterns change during illness and can stay dysfunctional afterwards • The vicious cycle where breath discomfort signals danger and escalates symptoms • How better breathing supports efficiency and fr...

In part two of Jackie’s conversation with physiotherapist and Long Covid patient Robin McNelis (“Robin the Physio”), they dig into how heart rate monitors and wearables can support (or sabotage) pacing in Long Covid and ME/CFS. Robin shares both clinical and personal examples of using tech as a behaviour-change tool, not a dictator, and how it can help people eventually trust their bodies more, not less. In This Episode: When heart rate monitoring is helpful and when it becomes stressful a...

Jackie is joined by Robin McNelis (Robin the Physio), a cardio‑respiratory physio and Long Covid specialist, who went from running marathons and leading hospital services to his own Long Covid recovery journey. In this episode: What happens when all your tests are “normal” but you’re clearly not.Robin’s role as a “holistic detective” for complex breathing, fatigue and Long Covid cases.How ideas from elite sport and marginal gains translate to people just trying to shower or get to the bathroo...

I talk with clinical psychologist Dr Jake Hollis about recovering from ME/CFS and Long Covid, and why the nervous system offers a more useful frame than the tired “mind versus body” argument. We explore how validation, language, and recovery stories can shift the brain’s predictions and open up real possibilities for change. • Jake’s lived experience of long-term illness and a slow recovery path • How neuroplastic recovery therapies fit alongside biology rather than replacing it&...

Five years after starting the Long Covid Podcast, Jackie introduces The Recovery Room – a wider, gentler space for anyone navigating Long Covid, ME/CFS, Dysautonomia, PoTS, Trauma, Burnout, nervous system overwhelm, and long-term recovery. In this episode, Jackie shares: Why the podcast is evolving and what “The Recovery Room” means.How her own recovery showed that healing is about more than symptoms.How Long Covid overlaps with other conditions, and why this space now holds many experiences,...

Welcome to The Recovery Room with Jackie Baxter This space is the natural evolution of a journey that began during my own recovery and through 5 years of the Long Covid Podcast. A place for anyone navigating a health challenge where they feel misunderstood, isolated and uncertain of the future.A place where science and lived experience sit side by side.A place where fear can soften, and hope can feel realistic again. Gain actionable insights and tools through honest stories, conversation...

I catch up with pain consultant Dr Deepak Ravindran on what four years of Long Covid clinic work and research has taught him about why people get stuck with fatigue, pain, brain fog and autonomic symptoms. We argue for a practical middle path that validates biological change while using neuroplasticity and whole-person support to help the system relearn safety and move forwards. • Deepak’s shift from pain medicine into leading a Berkshire Long Covid clinic and what patterns stood out o...

I'm joined by Bal Matharu to talk about how breathing links the nervous system, stress biology, and Long Covid symptoms, and why recovery often begins with creating a genuine felt sense of safety. We share practical ways to assess and change breathing patterns, plus the role of co-regulation, boundaries, and carefully held breathwork support. • Bal’s path from advanced respiratory physiotherapy and ICU work to lifestyle medicine and PhD breathwork research • The six pillars of li...

We hear Ana’s honest recovery story, from a gradual slide into Long Covid to the moment her nervous system finally stopped treating everyday life as a threat. We talk through neurodivergence, trauma, hypermobility and the practical tools that helped her rebuild a calm, creative life. • The slow build of stressors that leads to a major crash • Hypermobility and why intense workouts can backfire • ADHD and autism discovery and how it reframes burnout • Tests, uncertaint...

I share three common recovery traps and how we can find our way out of them without blame. Today's episode focuses on pacing, nervous system safety, and emotional processing so your body can stabilise and move forwards. • Pushing too hard on a better day and triggering the boom and bust cycle • Banking energy for healing by spending some, enjoying some, and saving some • Stepping off the symptom-fixing merry-go-round and reducing pressure • Creating safety through kin...

I talk with Jacqui from New Zealand about dropping from a high-energy, ultra-active life into severe Long Covid, then building her way back to running, swimming and full work. Mel Abbott joins us to explain why calming the stress response comes before increasing activity, and how tools like breathwork, visualisation and emotional processing can change the trajectory. • Jacqui’s pre-illness pace as a high achiever and endurance athlete • Catching Covid during grief and prolonged s...

In this episode of the Long Covid Podcast, I explore one of the most common — and often most confusing — parts of recovery: overwhelm. Overwhelm can feel like your whole system suddenly says “too much”: too much noise, too many sensations, too many decisions, too many feelings, too much uncertainty. It can build slowly over time or arrive out of nowhere — and in Long Covid, ME/CFS, & other post-viral conditions, it often shows up faster and more intensely than before you were ill. In this...

We hear Lalita’s Long Covid recovery story, from tachycardia and air hunger to a steady return to health by focusing on nervous system safety. We share practical tools for regulating symptoms in the moment, plus the mindset shifts that make self-compassion possible when you’ve been dismissed or frightened. • Early signs after COVID including raised blood pressure, numb lips and fatigue • Second infection followed by tachycardia, dizziness, vertigo, chest tightness, brain fog and ...

I'm joined by Pierre Brunschwig & Margaret Hampton as we explore how Chinese medicine and conventional western medicine can work together to treat Long Covid, where symptoms are complex and constantly shifting. We focus on subtypes, nervous system safety, immune recovery and the practical foundations that help people feel like themselves again. • Why combining medical “languages” can fill treatment gaps • Subtyping Long Covid and treating the person rather than the label • The five found...

We talk about how internalised pressure can keep the nervous system in threat mode and make recovery from Long Covid, ME/CFS and other health challenges harder, even when we are doing “all the right things”. We explore perfectionism, shame, and control, then land on practical ways to create space and choose small steps that help us feel a bit more okay. • what internalised pressure means and why it matters for nervous system regulation • why stress responses are meant to be short...

Nora shares her journey from years of back pain, gut troubles, and crushing insomnia to a calm, steady baseline by retraining a sensitised nervous system. Her story blends science, practical tools, and honest moments of fear, relapse, and quiet wins. • linking pain, GI symptoms and insomnia through fear-based conditioning • what "psychophysiologic symptom relief therapy" taught her • outcome independence and reducing sleep pressure • practical insomnia steps using soothing phrases and data •...

I talk with board-certified homeopath Roddy Schrock about what homeopathy is and why it can appeal to people recovery from Long Covid, ME/CFS and other complex, hard-to-explain symptoms. We dig into symptoms as messages, the power of deep listening, and how homeopathy can sit alongside Western medicine as one piece of a bigger recovery puzzle. • Roddy’s path from chronic pain and insomnia to studying classical homeopathy • Homeopathy as an energetic intervention and why the full ...

In this solo episode, Jackie Baxter unpacks what rest really is during Long Covid and ME/CFS recovery—and why simply lying down often doesn’t feel restorative. She reframes the struggle to rest as your body’s way of protecting you, not failing you, and introduces the idea of “banking energy for healing”. Jackie explores the different types of rest we need—physical, mental, sensory, emotional, social, creative, and nervous system rest—and how safety cues and nervous system regulation make deep...

Clare shares how her son went from a viral crash at thirteen to full, active living through pacing, autonomic nervous system retraining, and Mickel Therapy. We trace the medical dead ends, the messy middle, and the simple joy‑based habits that tipped him into lasting recovery. • early sensitivity shaped by stress and frequent infections • onset at secondary school, loss of attendance and friends • visible and invisible symptoms including brain fog and dizziness • NHS pathway, helpful GP, lim...

We explore a mechanism-first approach to Long Covid & ME/CFS, shifting from labels to measurable neural and vascular bottlenecks that can be retrained. We share how to use dose, recovery, and sleep consolidation to build capacity through precise, small inputs that compound over time. • reframing diagnosis as a map to mechanisms, not a label • why cerebral perfusion and autoregulation drive symptoms • concussion lessons that translate to Long Covid recovery • structural vascular traps and...

We share Ashley’s journey from bedbound to rebuilding a joyful life, showing how belief, somatic work, and gentle pacing opened a path out of long COVID. The body is not the enemy; safety, connection, and consistent practice turn symptoms from threat to guidance. • fast pre‑illness life and early warning signs • collapse after pushing through infection and isolation • lack of medical answers and disbelief from clinicians • finding recovery stories and protecting hope • moving from trigger‑hu...

We look squarely at the invisible load of caring for people with Long Covid and ME/CFS, why carers’ nervous systems shape recovery, and how boundaries and communication protect both sides. We share clear, humane steps that reduce burnout and build co‑regulation at home. • Defining the carer role across partners, parents and adult children • Why caring is invisible, isolating and exhausting • Boundaries that prevent “fixing” and conflict • Fluctuating illness, hypervigilance and control • Co‑...

I talk with author Simon Harrison about losing an active life to ME, finding a diagnosis, and rebuilding health through pacing, meditation, and a bold year seeking light in Portugal. The story is honest about setbacks and fierce about hope, with practical lessons you can apply today. • early denial and sudden onset symptoms • shrinking life, sensory overload, fear • self-experimentation with meditation, breathwork, gentle movement • diagnosis of ME/CFS and reframing recover...

We explore how the vagus nerve shapes recovery from Long Covid and chronic fatigue, and why building parasympathetic tone changes sleep, digestion, pain, and mood. Carissa Conrad shares clear guidance on non-invasive vagus nerve stimulation, safe pacing, and common mistakes to avoid. • what the vagus nerve does across heart, gut, immune and inflammation • why sympathetic overdrive feels normal and how to spot it • paced breathing, humming and gentle tools to build vagal tone • what vagus ner...

We map a clear path from medical leave to meaningful work, sharing the five-stage Career and Chronic framework and the skills that turn lived experience into authentic leadership. Practical scripts, capacity tools, and boundary strategies make work humane and sustainable. • What career means when health reshapes life • The five stages: off-ramp, on-ramp, the new, test and redesign, authentic leadership • Emotional skills for the bed-based phase • Boundaries without apology or battle • Baseli...

I sit down with Lily Spechler, a registered dietitian and long hauler, to unpack why weight change in Long Covid is a metabolic story, not a willpower issue. We map a safer path: fuel first, stabilise blood sugar and blood flow, then make tiny adjustments that your body can tolerate. • Adding 10–15% above BMR to halt weight gain and calm stress signals • Glucose spikes from standing and why compression and electrolytes help • Why cutting calories can worsen dysautonomia and fatigue • Protein...

Welcome to a milestone episode! In the 200th episode of the Long Covid Podcast, Jackie Baxter rings in 2026 by sharing personal reflections on the journey so far and the evolution of the podcast from its origins during her own recovery from Long Covid. Jackie explores: Lessons learned from recovery, including resilience, adapting to life’s unpredictability, and the importance of grace in setbacks.The difference between goals and intentions, with practical, science-backed advice on setting gen...

Creativity doesn’t just reflect our lives; it reshapes them when everything else feels fixed. I close the year by handing the mic to artists, writers, and makers whose work was forged in the long shadow of Long Covid & ME/CFS —and whose voices light the way forward. If you’ve been searching for proof that small creative acts matter, this collection is your sign. If a line, chord, or colour stayed with you, let me know which moment moved you most. If you'd like to be part of n...

We go from theory to practice on beliefs and recovery, building a daily framework that protects mindset, reduces flare spirals, and turns small wins into lasting change. Practical tools include proof journaling, identity shifts, nervous system regulation, and curating what you let in. • building a symptom and activity proof journal • reframing setbacks as feedback not failure • identity-based habits to support healing • managing physiology first with breath • countering nocebo and fear narra...

We explore how belief shapes behaviour, attention, and recovery in Long Covid and ME/CFS, separating grounded acceptance from resignation and linking science to daily choices. Stories, evidence, and small wins show why consistency and self‑compassion matter more than intensity. • defining belief as evidence‑based stance that drives action • antibiotics, diabetes, and stroke rehab as clear analogies • neuroplasticity explained in plain terms • acceptance for now versus resignation forever • h...

I'm joined today by Edmarie Guzman-Velez & Rudy Tanzi as we dig into a clinical trial of nicotinamide riboside for Long Covid, why NAD matters for cellular energy, and where the results show promise for fatigue, sleep, mood, and executive function. We share what worked, what did not, and the next steps. • Overview of NAD, mitochondria, and energy in brain and immune cells • Why Covid may deplete NAD and how NR restores it • Trial design using intra-individual crossover with placebo run-i...

I am joined by Katie Brennan & Andrea Henkel Burke to share Katie’s Long Covid recovery, how nervous system work unlocked capacity, and why an Olympian’s playbook of pacing, breath, joint maps and cognitive drills can fit chronic illness. The theme is small, smart inputs that prevent crashes and build a stronger baseline. • early symptoms, second infection and severe brain fog • switching from push-through to deliberate pacing • vagus nerve, breath and eye movement drills • athlete minds...

We trace Ivor Clark’s Long Covid recovery from a 2023 infection and UTI to a careful return to work, highlighting the routines and supports that made progress possible. Pacing, breathwork, oxygen therapy, and a rare GP who listened shaped a steady path back to confidence. • athletic past, late-pandemic infection, UTI and antibiotics complicating onset • post-exertional malaise, normal test results, delayed Long Covid recognition • limits of early medical support, value of an advocate and lis...

In this gentle solo episode, I invite you to explore a powerful reframe: what if your recovery journey isn’t something happening to you, but something you’re quietly guiding? Through metaphors, practical support & ideas, and reflections, I explore how to reclaim agency in healing — even when the skies feel foggy. You’ll learn how to: Shift from passive to intentional with micro-agency and sensory groundingReframe inner narratives with soft, empowering languageUse breath and boundari...

I talk with Kelly George about losing and rebuilding identity through Long Covid: the crashes that forced pacing, the relief of being believed, and the slow return of capacity that now lets her design a life she actually wants. Hope here isn’t vague—it’s built from activity management, nervous system care, and community that shows the way. • life before illness as active mum and professor • infection after mandates lifted and symptom escalation • debilitating fatigue, brain fog a...

This episode welcomes Dr. Leo Galland, Internal Medicine Specialist with over 40 years of experience working with complex conditions, which now includes Long Covid and of course ME/CFS. In this episode: Comprehensive exploration of Long Covid's complex natureIntroduction to the "Web of Long Covid" conceptInsights into post-viral illness from a 40-year medical perspectiveLong covid follows patterns of previous post-viral illnesses & similarities with chronic fatigue syndrome and post...

Technology offers unprecedented access to health information, but navigating it effectively requires understanding which tools serve our recovery and when to step away from screens. Jess from TurnTo shares insights on using AI and technology tools to support recovery from conditions like Long Covid and ME/CFS. • Different technology platforms have different agendas - social media optimizes for view time, search engines for quick clicks • Approximately 10,000 new updates emerge weekly about L...

Natalie Gould shares her journey from severe Long Covid to full recovery, revealing how nervous system regulation transformed not only her Long Covid symptoms but also pre-existing chronic conditions like psoriatic arthritis and migraines. • Life before illness included working as a CFO and living on a small farm • Initial Covid infection in July 2021 was mild but led to severe post-viral symptoms • Main symptoms included PoTS, tachycardia, severe insomnia, cognitive impairment and sound sen...

Recovery from Long Covid & ME/CFS involves exploring ways to move forward when you're nearly there or making progress but unsure how to reach the next level. Finding your own path is essential as there isn't a one-size-fits-all approach to healing. • Jackie's recovery had 3 phases: denial & pushing through, education & strategy-building, and gentle building • Healing isn't a destination but a soft place to land—embracing the journey puts less pressure on your nervous system • Con...

Dr. Robert Groysman returns to discuss the mechanisms behind Long Covid, focusing on mitochondrial dysfunction and its role in symptoms like fatigue and brain fog. • Dr. Groysman identifies six major mechanisms in Long Covid: dysautonomia, mitochondrial dysfunction, gut dysbiosis, endothelial dysfunction, mast cell activation syndrome, and hormone imbalance • Most Long Covid patients experience multiple mechanisms simultaneously, requiring comprehensive treatment • Mitochondria are cellular ...

**Content warning for discussion of suicidal thoughts from around 8:45 for 2 minutes** Jamie shares her powerful journey from being bedbound with Long Covid to full recovery, offering hope and practical insights into the healing process. • Initially experiencing tachycardia, PoTS, extreme fatigue, and sensitivities to light and sound • Deteriorating to the point of being bedbound and unable to care for herself • Reaching a mental health crisis point that became a surprising turning point • D...

Dr. Kendal Stewart shares his unique perspective on Long Covid through his background as a surgeon with training in functional medicine, neurosurgery, and cell biology. His approach examines the body as an integrated system rather than separating it into isolated specialties. • Complex conditions like Long Covid require a holistic view of the body as an interconnected system • Western medicine often silos patients into specialties based on symptoms, missing the bigger picture • T-cell weakne...

Dr. Henry Mahncke and Dr. Gitendra Uswatte share groundbreaking research on using brain plasticity principles to treat Long Covid brain fog through a comprehensive approach combining cognitive processing speed training, real-world skill practice, and personalized cognitive rehabilitation strategies. • Neuroplasticity is the brain's ability to change its structure and function through learning and experience • Brain HQ training targets cognitive processing speed to improve overall brain funct...

In this episode, Jackie is joined by Theresa Aristarco who shares her Long Covid recovery story. Theresa's journey from an active software engineer to battling long-haul COVIDNavigating complex medical challenges and invisible symptomsThe critical role of mental health in recoveryOvercoming vestibular issues and physical limitationsFinding hope and healing through physical therapy, medication, and support Episode Themes: Long COVID recoveryMental health and healingThe importance of com...